So, we jumped in with both feet — and signed up for 70 hours of treatment –
The first treatment we did for our son was with an institute based in Irvine. Neurofeedback seemed like a medically-sound approach and is the only one that uses some kind of objective measurement to evaluate the patient’s condition. We liked the possibilities and the “before” and “after” mapping to monitor the results of the treatment. As with many parents who jump at the promise of a cure, we immediately signed up with them after our first meeting with its director who’s an MD. That lent more credence to both the Institute and the treatment.
After the initial meeting and closing the “sale” with us, we never saw the good doctor again. And I mean it in the literal sense of the word! As soon as the deal was closed, we were passed on to his team of technicians and counsellors, who assured us that though we do not meet with him, he personally reviews the treatment and protocol to decide what settings my son should be getting. (The technicians operate the computer system where my son would sit for 40 min each session, and the counsellor is really a marriage and family therapist who would review the case every couple of weeks with us) Not once did the doctor meet my son. That should have sent a red flag, but we chose to squash those doubts because when you are desperate you want to believe that there’s going to be a good outcome so you push aside fears and negative thoughts.
We went into it, hoping for some results, not expecting a miracle. Even if it partially addressed one of two problems we would’ve been quite ecstatic. It did not address the two major concerns we were were trying to alter : 1) attention and 2) anxiety. After logging 9,000 miles in four months – three to four times a week for 4-5 months, 120 mile round trip from San Diego to Irvine each visit, for 75 visits, and some $10,000 poorer, there was no significant, no, make that discernible difference with Jack’s problems.
We had wasted the summer of 2009, dispirited because nothing’s changed.